Bryce was diagnosed with sickle cell disease when he was 3 years old. His parents, Tiffany and Alex, knew about the potential complications of sickle cell disease — Tiffany was particularly worried about the risk of stroke — and were referred to NYP/Morgan Stanley Children’s by their pediatrician.
Bryce had already been hospitalized once, at age 1, to receive a blood transfusion. They learned that a bone marrow transplant offered the only chance of a cure. His baby brother, Brandon, born December 2010, was a perfect match and served as Bryce’s bone marrow donor.
Bryce was in the hospital for three and a half months to receive his transplant in the spring of 2012. “The exemplary care we received was far more than I expected,” says Tiffany. The entire team cared for me, my child, and my family and lent a helping hand when needed.”
If you need to go through this experience, Morgan Stanley Children’s Hospital is where you should go through it.
Today Bryce is a vibrant young boy who enjoys taking swim lessons, which he could not do when he had sickle cell, due to the risk of pain crisis. Tiffany, an assistant principal for a public middle school in the Bronx, likes to speak about her experiences to let other parents of children with sickle cell disease know about their options.
“In the community where I work, I see children with this disease who are not being treated, and I tell them my story. The team here is very good at helping parents understand the options available to them,” she says.
Your child does not have to live with this. There’s a light at the end of the tunnel.